Chrons Disease

Crohns Disease Support
Written by Aidan Gillen   
Crohns is an auto-immune disease that is no respecter of persons.  Generally diagnosed in patients between the ages of 20-30, younger children and older adults can also be afflicted with the chronic illness called crohns.  The intensity of the symptoms can range from mild to severe.  Sometimes, it is easy to forget you are even sick and your crohns is technically in remission.  At other times, it is difficult to image living with crohns for even one more day.  Therefore, crohns disease support is vital.  You are going to need to be surrounded by people that understand what you are going through and can help you, when the need arises.

Medical Support

When you have crohns, it is important to have a team of medical professionals that understand the health challenges you face, and can help you if your symptoms get worse. For example, you will need a primary care physician who is aware that you have crohns.  He/she should have at least a basic knowledge of the disease, so it is easier to recognize when you are in trouble.

Of course, you will need the specialized services of a specialist like a gastroenterologist.  Although he/she may not be available for quickie doctor visits, it will be vital to have a link to the primary care doctor, so they can collaborate on the best treatment for you, if your symptoms should indicate a problem.

Career Support

On a good day, crohns does not generally affect your day-to-day living.  You can go to work, participate in physical activities, travel, or whatever your life requires to go about business as usual.  Unfortunately, if your crohns starts to flare up, normal life can come to an abrupt halt.  

You cannot be very far away from the restroom.  The pain and fatigue can make getting out of bed seem like impossibility.  You will probably be running a fever, and feeling like a limp dishrag, at the very least.  During periods when your crohns is most active, going to work is just not an option.  Sick and vacation days will only stretch so far, and then you are in trouble.Hopefully, you will have the career support necessary to keep your job, even under the worst of circumstances.  But, many people with crohns find employment outside the home out of the question.  Your boss simply needs someone who will not be gone every time he/she turns around.  You may need to find a job that allows you to take care of yourself and still earn a living.  Thanks to the Internet, work-at-home jobs are one option for people with crohns disease.

Family and Friends

If you are trying to live with crohns, and maintain  a positive outlook on life, you need to surround yourself with friends and family that will support you when it is easy to forget you have a chronic illness, and when you are in the hospital having a bowel resection to remove a stricture.  In truth, crohns is not one of those maladies that you can discuss with just anyone.  Most people do not want to understand when your bowels are making your life miserable.

However, if you surround yourself with people who are genuinely trying to be supportive, and who do not cringe in disgust if you need to talk about your symptoms, it will make bearing your crohns disease a lot easier.  In addition, if those you are close to understand, you will have help in an emergency.

For example, if you have children, you will need a plan in place for someone to take care of your family. When the symptoms are severe, you will definitely not feel like cooking or cleaning.  Plus, if you have to go to the hospital, someone can take the kids on short notice.

Support Groups

In addition to medical personnel, work solutions, and people within your inner circle, you may want to consider a support group for individuals with crohns disease.  If you live in a small town, it can be a challenge to find a place where you can go to discuss the troubles and triumphs of crohns. In that case, you may want to start a gathering of your own.

It is a great place to vent with people who will understand, when you are discussing symptoms and asking for advice.  Sometimes, you will be uplifted just to know someone that has the same challenges.  Other times, you will feel blessed that your flare up is not as bad as the guy sitting next to you.

Also, there are resources available for information and help online, if you want to check them out.  One of the most helpful sites is The Crohns and Colitis Foundation of America .  They have a lot of information that will be helpful.  Also, for many answers to health information,  When even your specialist is confused about how to get the symptoms under control, he/she might send you to the Mayo Clinic for state of the art treatment of crohns.

So, no excuses!  Do not sit around your house dwelling on the fact that you have a chronic illness.  Find the support you need.  Then, get on about the business of living.

 
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